Researchers and healthcare professionals want to understand more about how to improve people’s health and care.
This means understanding more about treating and preventing ill health and planning health and care services in the most effective ways.
They can do this by looking at and linking data from many people’s records and from different care settings.
But getting access to that data for research and planning traditionally takes a long time, is complicated and expensive. That’s because each piece of research has to get agreement from many organisations and from the people whose data is being looked at.
We want to
- help Leeds be a ‘research-ready’ city by making it quicker and easier for researchers and care providers to access people’s data
- enable researchers and care providers better understand how to improve health and care for Leeds’ people more quickly, efficiently and in new, more lasting ways
- keep Leeds’ people at the heart of our ambition by understanding their views about using their data for research and planning, and by making it easy for them to share and record their preferences.
Our Living in Leeds project team worked with many partners across the city to understand the current situation. What is already happening, what is missing, what are the opportunities and the challenges?
- We commissioned in-depth fact-finding.
- We consulted a wide range of people about the use of health and care data to understand public engagement activity, current ways of working, technological capabilities, and the scale of the health and care workforce understanding and skills.
- We found that the city wants in-depth public and workforce engagement support for projects which look at the use of people’s data for research and planning.
- We discovered that new initiatives are emerging in Leeds, relating to health and care data, whilst developments at national level continue to evolve and change quickly.
As a result of these findings and the evolving developments in the use of health and care data, we have incorporated Living in Leeds into our new Insights Catalyst which supports specific, emerging partner initiative and projects.
- Insights Catalyst– ‘Born and Bred in’ (BaBi) Leeds.
We are working with partners to develop our first project, Born and Bred (BaBi). It is modelled on the very successful study from ‘Born in Bradford’ called BiB4All. That important new study is embedded into the maternity care record in Bradford and builds on the success of the Born in Bradford (BiB) programme over the last 12 years. )
It aims to glean new insights into health and care during pregnancy and the early years of life, developing a tool that can be used to manage healthcare for generations to come.
For BaBi Leeds, we are providing programme development, insight, engagement, and evaluation support to ensure that pregnant women from all communities are offered the chance to participate. We especially want to ensure those with the greatest health inequalities can benefit.
2. Our second project, working with the Leeds Health and Care Academy, will focus on the health and care workforce. This will help ensure they have the necessary skills and understanding about the use of people’s health and care data for research and planning and, most importantly, know how to discuss it with and advise all those in their care.
How we work
Our Insights Catalyst work is committed to:
- growing local people’s trust in how their data is used, by whom and why
- revealing new insights and understanding
- informing researchers and planners
- improving health and care services.
Our Insights Catalyst work will always be:
- based on evidence from local people
- evaluated to ensure positive outcomes
- shared to inform our partners
- focussed on helping reduce health inequalities.
Keep in touch
Please contact us for more information or if you are interested in being involved.
Please revisit this web page for more updates as our work moves forward.
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