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Whenever we use health and care services, the people who care for us record information – or data – about us. This helps them provide that care in the best possible ways.
But how else can we use that data in ways that benefit the people of Leeds longer term?
By linking and studying many people’s health and care data, researchers and healthcare professionals can better understand how to treat and prevent ill health and how to plan services in the most effective ways.
We aim to support partners
in using people’s data in appropriate and secure ways to achieve this
in understanding what Leeds’ people think about the use of their data for research and planning, and in making it easy for them to share their views.
‘Born and Bred in’ (BaBi) Leeds.
We have supported partners in the Born and Bred (BaBi) in Leeds research project. It is modelled on the very successful study from ‘Born in Bradford’ called BiB4All. That important new study is embedded into the maternity care record in Bradford and builds on the success of the Born in Bradford (BiB) programme over the last 12 years. )
BaBi Leeds is part of a regional and national pilot. It is creating a systematic way of recording consent from pregnant women to share their routine health and care data, as part of establishing an ongoing research cohort of mothers and babies in Leeds.
It aims to glean new insights into health and care during pregnancy and the early years of life, developing a tool that can be used to manage healthcare for generations to come.
For BaBi Leeds, we have provided programme development, insight, engagement, and evaluation support, input to ethics committee submissions and funding bids. We are helping ensure that pregnant women from all communities are offered the chance to participate, especially those experiencing the greatest health inequalities.
We now sit on the steering group for the regional/national Babi programme, providing strategic support.
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